It’s Been a While…

So, I haven’t posted anything to my site in a while, and sadly it was unable to be avoided. That’s one of the shittiest parts about CF if you get sick or rundown, there’s no toughing through it, you just have to endure…until its run its course.

Well, for me the past several months have absolutely SUCKED. I have had one problem after another, and rundown at its worst. So, I’ve been biding my time, and recovering as best I could.

While I couldn’t really do anything physical or even much of anything, I have been thinking about EVERYTHING a lot…and I think that’s one of the things about CF that’s strange. I’ve been told many times over my life that I have an “old soul.” And I’m guessing most CFer’s have as well. I think it’s a given when you have so much time to contemplate EVERYTHING. It forces you to “age, or grow up” faster than the average person.

Throughout my while life I’ve had older friends, I’ve dated people who are usually older than I am. And not purposefully…but, more out of a desire to have someone I can relate to better, they just so happen to be older.

So, being that the last few months have been difficult, I’ve been trying to figure out a way to accommodate life around being sick, and its not easy. I have however discovered a few things that may make it easier as I get older, if I get “older.” (not trying to be morbid, just realistic).

The Best way I can describe what I’ve been thinking about is simplicity, I need to develop my life around a simple set of needs, wants, belongings, activities, etc..

So, I have decided I want to look into the “Tiny House” movement, and find a way to work in some sort of field where I can do most of my work from home, it will probably be the only way I keep a semi-normal life…

Anyway, I have been sleeping very little and am trying to get this post up as a re-entrance into my posting schedule, as I’ve been out of the loop for so long now.

For that I do apologize, I wish it wasn’t this way, but it is…for now at least. So, to those who have read and posted in my absence I appreciate you greatly, and any new viewers I thank you for taking the time. it means a lot to me to be able to reach even the small number that I do.

Hopefully everyone has had a good summer, and enjoys the season change as much as I do…but, for now, have a good rest of the week and I’ll be posting more frequently now, hope you enjoy. Thanks again for stopping by!

Fellow CFer’s…breathe strong! And stay healthy!

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Been Gone…

I haven’t made a post in a few days, been having a rough time CF stuff. But, I did want to make a post and throw it up…

I have noticed something lately that I don’t really know how to approach but ill try.

So, I don’t have nearly as many friends as I used to, I have acquaintances, and I have a few close friends. However, it is very hard to keep friends when you constantly have to disappear for several days at a time to tend to your health and physical ailments.

I have slowly lost fiends over the years for many different reasons some of which were my choice, some weren’t, some were ridiculous reasons, but then there’s those people who juts kind of fade away not for any particular reason. Those I think are the hardest to come to terms with. I was going through my phone the other day trying to clear out some old unused contacts and I noticed I was deleting a lot of “old friends” numbers…

It is something we all come to terms with when we start getting older people drift apart…its unavoidable. But, that doesn’t mean it makes it any easier to do or even accept.

Anyways, just wanted to throw it out there, if you have an old friend and you haven’t talked to them in a while, reach out. It is something we all need to do more of. We allow social media to kind of fill in that spot but really how many close fiends do you still have that you have had since say college? Its drastic how many people are out of my life that I never thought would be.

Dating with Cystic Fibrosis

As I have created this page, I get more people specifically looking for CF pages than anything else, it isn’t really something of a topic most people will stumble upon and read just to learn more, and that’s fine…I’ve accepted that.

However, I have had a few friends read this page, people who have either a friend or family member with CF or know someone with CF…it isn’t a large group, but there are those who do.

One common question I get as my CF becomes more prevalent in my life, and it shows itself more than it did when I was a younger man. How is it dating when you have Cystic Fibrosis?

So, here’s the answer I give them: Dating in general is a hard thing to do, especially in the times we live in where most people just want a quick hookup, as there are no less than 5 apps/sites dedicated specifically to that. But, having something like CF where if the person you are dating finds out and looks it up before you can explain what CF is like, they’ll probably be scared off. So, if you can make it to the first date, be honest…it is the best way to break that uncomfortable barrier. If the person you are dating comes and is curious explain what CF is, but don’t be graphic and morbid, ease them into life with Cystic Fibrosis. Allow them to see, you are just a person like anyone else, just so happens you have CF and have to take some pills, and do some breathing treatments. Here’s where it can get tricky…the first time that person sees you “sick” will tell you everything you need to know about dating them. If they are caring, concerned, and curious chances are they are a good person for you to keep dating, most people like that are genuinely good people. But, there are also the ones who will be fine, until they see you sick and it will scare, intimidate, freak them out, or maybe just not fit into their idea of what they want in life, which is fine, but totally on them. You control what you can and the right person will be the person you need them to be.

As far as everything else goes i.e. long-term relationship, living together, sex, marriage, etc. It is all do-able with the right care, planning, and most importantly the right person.