Struggling

Its about 1pm on Friday, and I’m struggling pretty badly. Haven’t been feeling too good this week at all, I’m definitely having a rough week to say the least. Just a couple of the things that have been ravaging me this week:

  • Cold –> hot –> cold –> hot –> Freezing…this weather where I live is strange to say the least. When it goes from hot to cold like this, especially this often, my body has to adjust and readjust, and it makes things incredibly hard.
  •  I had some kind of food poisoning, or at the very least a nasty stomach bug. Been in the bathroom a lot. When I’m not, I’m in bed trying to keep myself in the absolute    “right position” so my body can relax and give my abdomen a break.
  • Then there’s the outside stressors that have added onto the joy of this week like getting a notice that my car insurance is going up, and I still can’t find a reasonably priced health insurance.
  • Also, had a death in the family…my Grandmother’s brother died a few days ago, and when people around me die it makes me wonder how I am outliving these people who die for no reason, meanwhile I’m sitting here struggling to breathe, and I’m still alive. Just a weird sort of mind job I’d rather go without.

So, ya that’s what my week has been, riding the struggle bus for sure, but not because of a hangover or anything where I had too much fun. Just the regular old BS that having a chronic illness brings to the table. That’s also the reason I haven’t blogged in several days.

But, anyways…I am finally starting to get a little relaxation and some of these additional symptoms are going away. While I can I am going to try to get some stuff I need to get done handled. Hopefully everyone had/has a good week, and now weekend. Ill try to get up another post a little quicker next time. Hopefully today is the last day of this extra fun! Lol.

Sorry, I can barely think straight, so no CF tips, or body hacks on this post. I’ll add one the next time for sure.

“Off the record”

YES, it’s Friday afternoon, and I have had a rough week. However, most of the time the silver lining of CF or life in general is only visible behind a cloud of unpleasantness. I have been trying to raise some awareness to this invisible illness Cystic Fibrosis, that so few American’s have, and in doing so I have realized some things about people in our society. The term out of sight out of mind is an insane thought until you put some thought behind how YOU operate in your day to day life. Think about it, when you have a sick friend, or pass a homeless person in your car, or see a dog get beat by some dickhead it bothers you, however as soon as that next thing pops into your brain its replacing that “bad feeling.” Its not that we do these things on  purpose, its just in our nature.

Imagine what the world would be like if every time we saw a homeless person we stopped and helped them. If every time we saw a sick friend we did everything in our power to make sure they were on the path to getting better, or at least getting help. These thought have lead me to a silver lining thought: We need to put our money where our mouth’s are. So, I am going to start doing this at least once a week, I am going to go out of my way to help somebody, but here’s the catch, none of what I do is going to be recorded, or even shared with anyone. I am going to do everything I can to keep it between me and the person I am helping. I could be something as simple as helping an older lady load her groceries, or getting a meal for a homeless person without asking first, “just do it” (as NIKE says…

This isn’t really a new concept, but it is one that isn’t employed enough, we too often just go about our business. Sadly, I am guilty of this as are most if not all of us. So, I ask that you reach out and help someone at least once a week, if not once a day. I know that’s asking a lot of people who are already very busy, and spread thin. But, I believe we can make more of a difference than we feel we can as one person, if it’s a bunch of us doing it the results will be amplified greatly. Now, it can be someone you know, or a total stranger…but, please be safe while doing this. Some people are looking to take advantage of kind-hearted people so use good judgement. With the Super Bowl just around the corner we are all planning a party, or making arrangements for gluttonous amounts of food and drink to be available to us. Meanwhile, just down the road the man on the corner is starving and sleeping outside. Sometimes we get so caught up in our own problems we forget to reach out and realize that there is always someone who has it worse.

I have Cystic Fibrosis, it sucks horribly, it’s painful, and it makes most daily activities very difficult…if not impossible. But, I have a bed to sleep in, clean clothes to wear, and food to put in my belly. I’m not asking you to go give everyone who looks down on their luck $100 bill…I am asking you to give them a bunch of bananas, or allow the lady with a crying baby and three toddlers to go in front of you in the checkout line, simple things that can have a greater impact than the action taken.

Hopefully your week wasn’t too rough, and have a great weekend. Be safe, there will be crazy, drunk, idiot’s out driving around from party to party watching football, and consuming huge amounts of alcohol. Enjoy the game, RISE UP, and watch the Falcon’s win this thing!

Good Morning…kind of.

So, it’s only 10:30 and I’ve been up for about an hour. This sucks, lol, and after last night’s attack I kind of wanted to get more than 3-4 hours of sleep, but obviously that’s not happening. Well, this is pretty routine like I said in my last post…so, I’m sitting here enjoying a STRONG cup of coffee, and listening to some Dave. The fact that I’m used to this is telling especially since I just deal with it like any other day, while trying not to allow previous stress to creep into me after I’ve bypassed whatever is stressing me out…like an attack in the middle of the night.

Well, it is early and I’m still kind of trying to get my bearings, and shake off being pretty exhausted. On a positive note it feels like a did 1,000 crunches last night, and that’s cool…I guess…haha, ahhh! So, I’ll probably mess around until I’m awake enough to get some food in me, and rinse off the soreness in a scalding hot shower. Funny what the human body can become accustom to after it happens enough.

I’ll probably do another post this afternoon/evening sometime. So, I hope everyone has a great day. Again, if you’re following these blog posts I very much appreciate it. Spreading some knowledge about the unseen aspects of this invisible illness called Cystic Fibrosis is very important to me, and your help means a lot.

Jammin Out!

Not too much is better than catching an old song you haven’t heard in a while…that nostalgic feel comes rolling in almost pulling you back into that time totally.

I have been trying to add some different stuff to my blog to reach a wider variety of readers, pull them in hopefully then they’ll see my other stuff, and start following my site or Twitter, etc. So, today I’m sitting here going through old Facebook posts, looking at old pictures, and jamming out to tunes back from college days, and there isn’t much of a better feeling than getting into that groove. I love it!

I had a rough couple of days there with the CF, but am feeling a bit better today, and in a bit I’ll have to go run some errands. Catch up on the pile of shit on my overloaded plate, and try to taper back on the overflow of procrastinated chores of daily life with or without CF…but, I revel in these days, the days that allow me to look back at the previous and realize I do have GOOD days, and they aren’t all BAD…it’s hard to pull yourself out of the moment when a day is bad or when stuff isn’t going your way. However, when those good ones roll around it makes you appreciate them that much more. So, if you’re having a bad day, week, month…just try to keep your head up and press on. Hopefully at some point it will ease up and allow you to enjoy the good, but appreciate the bad for allowing your to notice the good. And, with that I am going to go try to knock out some of these errands before the other shoe drops…lol. Hope everyone had/has a good day!

CF Life tip of the day: pick up a pack of sterile rubber gloves next time you are at the pharmacy…put a couple in baggies and keep some in your car, your favorite jacket, etc. The next time you have to pump gas, or use a public restroom, slip the gloves on and cut down on the chance that you’ll get some kind of nasty bacteria, or germs from stuff. Especially because people are so ignorant about good hygiene. It’s a huge stress reliever when you need to do something and there the gloves are…less worry!

CF Life Body Hack # 3: Feeling tired, or just out of it, having been sick the previous day? Go get a hot shave from a male hair salon. They will hot towel your face, head, and neck, use a straight razor with all the accoutrements of the trade…it is amazing how much a hot straight razor shave will improve your mood. Also, good grooming habits tend to make you feel better anytime. Enjoy!