Dave Matthews Band

It’s almost 3 am, and I’m sitting here watching some basketball, listening to “Louisiana Bayou”…wide awake, and bored as hell.

I just went and checked out what the Dave concert coming to my city in May had left tickets-wise…I usually get lawn seat anyways so it shouldn’t be a problem. But, I don’t know how I am going to feel come 5/31…which sucks. Especially because I’d rather have a seat that doesn’t make me super sore afterwards…yay for CF…lol.

I’ve been to several of the concerts in the past ten years…maybe 3-4 and I love it, he’s one of my favorite live musicians by far…but, getting sicker as I am I don’t know if I can make it this year, and that bums me out.

If you’ve been following my blog at all you know I have Cystic Fibrosis, and that I’m trying some new avenues of approach in life, income, activities in general…and basically my approach to being sick all the time and only getting worse, as CF is a progressive degenerative disease.

I haven’t blogged in a few days because I’ve been going through some rough shit, all kinds of unexpected health stuff, family stuff, and just random things that when added on to the already heaping pile of shit on my plate, is like the straw the breaks the camel’s back. I know I complain a lot but I guess that is what this blog is for me…a way to share my pain with people without having to pay a therapist, or annoy my limited number of friends to the point that they want less to do with me than they already do. Its pretty lonely having a genetic disease that restricts your ability to participate in the lives of the people you’ve grown up with and call friends.

So, like I said I just got of Ticketmaster, and am thinking if I can get a family member to “birthday purchase” me some tickets I may go, but if not, I probably wont be able to…sad. I sound pretty f#cking pathetic tonight…I must say. Whatever though, like I said I use this as an outlet so I don’t go nuts keeping it all in.

I am still in the process of trying to find some sponsors or companies that want a CF patient as a brand ambassador, but so far…no luck. Which is ok, I didn’t expect it to happen fast, if it ever happens at all. But, damn…lol. I could use some help in a major way.

If you know anyone looking for a person to sponsor, or if you know a company looking to do some philanthropy, or even a store looking for a brand ambassador…please pass the information along to me, or give them my email: pmma85887@gmail.com. I would be grateful. Also, me and a comedian buddy are going to start doing a podcast, something like “CF kid and the Canuck” or “Laugh at my Sickness with me.” We haven’t started yet, so it’s still in developmental stages obviously, but again, any ad placement or capital would help move things along. And, like I’ve said before compensation will be met with advertising, and promotion…I’m trying to set up some partnerships! Keep me in mind…

Anyways, as I haven’t posted in a while I’ll quit my whining, and get back to the usual…here are my CF Life hack’s, and tip’s of the day:

CF Life tip of the day: Don’t neglect your physical appearance, I have been guilty of this frequently, not getting haircut’s, or wearing sweatpants out…keeping yourself looking good, even if you don’t feel good, can in and of itself boost your mood, and give you a mental edge. As well as dressing nice, it definitely makes you feel better about yourself, and boosts your self-image.

CF Life Body Hack # 5: Sleep with your body in a fixed position, using pillows, keep your head above your torso, this will keep mucus from draining into the back of your throat, which makes it much easier to breathe throughout the night, also, it doubles as keeping reflux from making its way to your esophagus as easily…which with something like CF can literally wake you in a panic thinking you’re having a heart attack…it’s incredibly beneficial. Try it!

Super Bowl, RISE UP Falcons!

This is my second blog today, but it is Friday, and it is also a couple of days away from the Super Bowl. Now, I’m not a huge NFL guy…my sport is basketball, and my addiction/hobby is Golf, lol. However, I enjoy the fact that my city’s team is going to the ship! It’s been a while, so it’s nice, especially since it is one of those things that brings us together as a group of like-minded citizens, of the same community, all pulling for the same outcome. It’s a great thing to witness the crap we see, and deal with on a daily basis put aside for the love of the game.

So, hopefully I am going to be going to a buddy’s house down in the city of Atlanta to see him for a bit, probably watch the first half with him and his wife, as well as a few close friends. Then I am going to be heading back North to around where I live where a good family friend is throwing a Super Bowl block party, and it should be a lot of fun. Also, a few of my fraternity brother’s are going to be there with their wive’s, and being that I don’t get to see them often I am very excited.

Now, I am going to give a quick few tips about doing things like this with a condition like CF, or anything that requires lots of medications and making sure certain things are present or available. So here goes: Don’t stuff yourself the day before a day when you are going to be eating and drinking a lot, you will feel less lethargic and have more energy for the big day. Wake up and turn on some good music, music that you like to jam out to. Straighten up your surrounding a bit, as returning to a nice clean house/room is very pleasant, and reduces stress. Exercise! You will be eating and drinking a lot during the day of the game, usually “junk food” type stuff, and soda’s, beer, etc. This will give your body a good start to the day, and make room for all that good grub! After you get dressed, grab an extra change of clothes, just in case you spill a drink or sit on a plate of wings. Also, get all of your stuff together and load it up, then look at it a couple of times to make sure you have all of the things you need. After that, just get yourself ready and head out. Drive carefully, as the drunk folks will be out, in high numbers. But, enjoy the day, the game, the company of good friends and family, and the experience as a whole…getting to a Super Bowl is a big deal, everyone will be elated, and this will rub off on you.

Well, that’s about it for the Super Bowl festivities, and the day in general. Like I said, I hope everyone has a great time, and gets to watch a good game of football. To my Falcon fan’s RISE UP and let’s win this thing!!

CF Life tip of the day: An empty bottle cleaned and dried out, then lined with a plastic baggy is a great way to carry a re-usable spit bottle around. When you’re almost full, zip the baggy up, and throw it away, then put in a new one. Boom! Now you have to only bring 1 bottle for a day, and off to the races…you’re good to go for the whole day. For the cost of a couple plastic baggies.

CF Life Body Hack # 4: Keep a couple of small bottles of honey around the places you spend most of your time. It is an incredible superfood, and it tastes great! Also ,it is not possible for honey to go bad, it just crystalizes. If that happens stick in next to your body in your pocket for the body heat or pop in the microwave for a few minutes, and back to liquid it goes. It can coat your throat if you cough a lot, your esophagus & stomach lining if you’re having a lot of reflux. Alongside all of that it is great for a quick healthy pick me up, just pour a couple of spoonful’s down your gullet, and go about your day. Enjoy!