The Return…

So, it has been a pretty long time since I’ve posted anything, I haven’t been doing too well health wise, but trying to keep my spirits up.

I had some really bad CF rundown, and then a week ago I had a broken tooth extracted…that’s 3 now in less than 2 years, ughhh!

But, I don’t want to let this blog go stagnant, however I have to admit it has been low on my list of priorities, especially being in pain and not being able to take pain medicine…I don’t know if I’ve mentioned this before, but I have had a problem with pain meds in the past, doctors will fuck you up if you’re not careful…

Anyways, I’m doing a good bit better now, still not totally healed up, but on my way for sure…hopefully!?

After my Mollie girl left us, I had a pretty rough couple of weeks, then an extraction and now I’m finally starting to come out the other side, but its a bitch to say the least.

However, I am a strong willed person and I wont let things defeat me anymore, besides killing me I’m not gonna stop. So, good…but, kind of morbid I know, lol…

Well, I just wanted to get back into the swing of things and get y’all updated on my situation…im not dead…lol! I hope everyone has had a good spring break, Easter, or anything you’ve been up to really…

And finally, I will be posting regularly again, and am actually thinking about upgrading my site subscription for some different benefits and more personalization, maybe starting to branch out a bit and see how it goes…so wish me luck!

Thanks for reading and hope everyone is doing well!

– Will

 

Getting back into Jiu-Jitsu

So, I have been feeling up and down recently having both good stretches, and bad stretches…back and forth.

I have decided to start doing everything I can do to get my physical health back to where I would like it to be. And I’m not going to take no from my body for an answer…so I am going to go up and speak to my of jiu-jitsu coach and see about getting re-enrolled in some classes. And I’m excited, to say the least…

I have decided in an attempt to secure some of the stuff I’ve recently been discussion in my blog that this is the best course of action, to build myself up to appoint where I am a viable option to corporations.

Anyways, hopefully within the next few weeks, I will have some of this stuff hashed out and figured out totally!

I will keep you updated as I plan to bring you along on my journey!

Dave Matthews Band

It’s almost 3 am, and I’m sitting here watching some basketball, listening to “Louisiana Bayou”…wide awake, and bored as hell.

I just went and checked out what the Dave concert coming to my city in May had left tickets-wise…I usually get lawn seat anyways so it shouldn’t be a problem. But, I don’t know how I am going to feel come 5/31…which sucks. Especially because I’d rather have a seat that doesn’t make me super sore afterwards…yay for CF…lol.

I’ve been to several of the concerts in the past ten years…maybe 3-4 and I love it, he’s one of my favorite live musicians by far…but, getting sicker as I am I don’t know if I can make it this year, and that bums me out.

If you’ve been following my blog at all you know I have Cystic Fibrosis, and that I’m trying some new avenues of approach in life, income, activities in general…and basically my approach to being sick all the time and only getting worse, as CF is a progressive degenerative disease.

I haven’t blogged in a few days because I’ve been going through some rough shit, all kinds of unexpected health stuff, family stuff, and just random things that when added on to the already heaping pile of shit on my plate, is like the straw the breaks the camel’s back. I know I complain a lot but I guess that is what this blog is for me…a way to share my pain with people without having to pay a therapist, or annoy my limited number of friends to the point that they want less to do with me than they already do. Its pretty lonely having a genetic disease that restricts your ability to participate in the lives of the people you’ve grown up with and call friends.

So, like I said I just got of Ticketmaster, and am thinking if I can get a family member to “birthday purchase” me some tickets I may go, but if not, I probably wont be able to…sad. I sound pretty f#cking pathetic tonight…I must say. Whatever though, like I said I use this as an outlet so I don’t go nuts keeping it all in.

I am still in the process of trying to find some sponsors or companies that want a CF patient as a brand ambassador, but so far…no luck. Which is ok, I didn’t expect it to happen fast, if it ever happens at all. But, damn…lol. I could use some help in a major way.

If you know anyone looking for a person to sponsor, or if you know a company looking to do some philanthropy, or even a store looking for a brand ambassador…please pass the information along to me, or give them my email: pmma85887@gmail.com. I would be grateful. Also, me and a comedian buddy are going to start doing a podcast, something like “CF kid and the Canuck” or “Laugh at my Sickness with me.” We haven’t started yet, so it’s still in developmental stages obviously, but again, any ad placement or capital would help move things along. And, like I’ve said before compensation will be met with advertising, and promotion…I’m trying to set up some partnerships! Keep me in mind…

Anyways, as I haven’t posted in a while I’ll quit my whining, and get back to the usual…here are my CF Life hack’s, and tip’s of the day:

CF Life tip of the day: Don’t neglect your physical appearance, I have been guilty of this frequently, not getting haircut’s, or wearing sweatpants out…keeping yourself looking good, even if you don’t feel good, can in and of itself boost your mood, and give you a mental edge. As well as dressing nice, it definitely makes you feel better about yourself, and boosts your self-image.

CF Life Body Hack # 5: Sleep with your body in a fixed position, using pillows, keep your head above your torso, this will keep mucus from draining into the back of your throat, which makes it much easier to breathe throughout the night, also, it doubles as keeping reflux from making its way to your esophagus as easily…which with something like CF can literally wake you in a panic thinking you’re having a heart attack…it’s incredibly beneficial. Try it!

Imagine…

So, it’s about 2pm and the Super Bowl is going to come on in a couple of hours, so with a small amount of time to kill, I am going to write this and then i’ll be done for the day, probably won’t post again until tomorrow. I am feeling pretty good today, aside from being congested a bit (the cold weather always does this to me) so I am trying to get some stuff done that I didn’t get done this past week.

As I’ve stated in previous blogs, I am seeking and trying very hard to find my place in this whole social media neighborhood, as well as finding my niche, if you will. Working a 9-5 is out of the question for me, getting creative about how to earn a living, and ways to create income while being happy at the same time is something I have been focusing on a lot recently. I find myself dreaming about being a spokesperson, or brand ambassador for clothes, cars, lifestyle consumer goods, etc. It is a bit daydream-esque I know, but it is my dream to be able to focus on my health, and have that focus be the platform for which I “sell” myself to companies showing the world what someone with Cystic Fibrosis can do with a bit of financial, or product backing. So, I have been researching what kind of companies “sponsor” people, and although there isn’t a lot of “individual sponsorship” for people who aren’t famous or star athletes, there are a few people who’s model I am going to try to follow, but in doing so I want to carve out my own path, something that really hasn’t been done much, if ever. Now, watch me transform my health, my life, and my community while dealing with the daily struggles of CF, but no holds barred. So, no filter, no censorship…the raw and real life that I live, but with the things I want and dream of being intertwined to a create a journey of regaining my former glory of health, so to speak. A full vision of what my life is, the roughest and best parts of it. Intertwined hopefully with some kinds of product, service, and financial support I am doing everything I can to attain. So a car commercial, a clothing commercial, a food commercial all rolled together and how it pertains to me and my health, the way I have to do certain things, and how those products or financial backing play a roll in what I do, when I do it, and how I do it. I realize there are a lot of “if’s” in the idea I am figuring out how to bring to fruition…there are already hurdles I had no idea I would run into, so I understand it’s very presumptuous to think I can do this or obtain the things I hope to obtain…it’s my dream though, and I am doing everything I can with what I have available to me to make it a reality, hopefully one day I’ll be looking back reading this saying “I did it, I’m here!”

How it looks in my mind: I wake up and the camera is already rolling “a day in the life begins.” I roll out of bed and do my morning coughing and hacking routine where I maybe reach for and drink, thanks to their sponsorship, my bottle of Gatorade.

Then I get all of my medications and treatments out of the way, while I play around on my computer or video game (given to me by the electronics company that sponsors me with their product’s) and relax while listening to my earphones…

As I finish up and start down to the kitchen to make some breakfast I open the fridge containing all the Boost, yogurt, etc. that I can consume, with the help of their generous sponsorship, my product placement is me nourishing my tired, sore, weak body with a couple of chocolate Boost’s and a yogurt to get my blood sugar up.

Next is bathroom and shower time, this is my personal time to get my mind right, and allow the hot water to reduce the tension in my muscles and relax my body…afterwards I use my skincare, or sore muscle creams to ease the rest of the pain and continue my day.

I come out to head on in and get dressed, depending on the day’s tasks, appointments, business meets, etc. I reach for a certain garment of clothing provided to me by my favorite outdoor apparel company, or if it’s serious business, I select a suit and tie from the couple of tailored suits given to my by a generous men’s business attire company. I then throw on my New Balances, or my Sperry’s or my penny loafer’s…all depends on what I have to do that day.

As I finish up and get ready to head out, I go out and start the truck, sedan, or coupe generously given to me to get around, and act as a rolling advertisement, by my automobile sponsor. Which is decked out with ad placement in the form of stickers, or a certain “full-body” decal, or a window flag, maybe even a creative license plate, or paint job.

I head off to the meeting where I am doing a collaboration for a podcast, a meeting with a pharmaceutical company about their new allergy medicine, or their new version of a rescue inhaler, even something generically taken by many people Advil, or Tums…whatever company willing to throw their support being me, I will give my all in helping them reach the goals of said company.

Now, this is entirely fantasy based post, none of this real as of now, and none of these companies support me in any way, this is basically an: if I could wake up tomorrow and be in a world created totally by my dreams and wishes scenario. Idealistic would be good description…but, fantasy is more on point. This isn’t probably something that’s even possible to do, as most professional athlete’s don’t have this kind of sponsorship…but, just imagine…being able to focus on my health totally, not having to worry about what I was going to wear, how I was going to get form point A to B, what I was going to eat, if I was able to afford my medication, and doctor appointment. If it were all, or even partly covered by some kinds of help from the corporate world it would change my life.

These are the kinds of things I dream about…not luxurious trip’s, or expensive watches, the newest iPhone, the most sought after rims for a car, endless margarita’s, or anything of the sort. I dream of being able to, as If I didn’t have CF, just LIVE, to do the daily activities most people take for granted as they move forward in life purchasing their first car, their first home, having children, getting married. It’s not impossible, but it’s very improbable that I will have that kind of life, the Cystic Fibrosis is an incredibly heavy ball and chain that keeps me in the place I’m in, basically just keeping my head above water is requiring all of my energy and time. So, my dreams include the things that would allow me to flourish, or just have what most people consider “normal.”

Again, I know how this sounds, trust me I see it the same way, but that doesn’t mean I am not going to try…because you never know. Someone reading this could be a fortune 500 executive, and decide hey I like this guy’s idea, and id love to help him get his health back in order…let get the ball rolling…lol. I know, I know…but I can dream right? lol. Anyways, enough of this high fantasy, back to reality it is. Either way I appreciate you taking the time to check this out and have a great day, be safe while enjoying the Super Bowl.

Jammin Out!

Not too much is better than catching an old song you haven’t heard in a while…that nostalgic feel comes rolling in almost pulling you back into that time totally.

I have been trying to add some different stuff to my blog to reach a wider variety of readers, pull them in hopefully then they’ll see my other stuff, and start following my site or Twitter, etc. So, today I’m sitting here going through old Facebook posts, looking at old pictures, and jamming out to tunes back from college days, and there isn’t much of a better feeling than getting into that groove. I love it!

I had a rough couple of days there with the CF, but am feeling a bit better today, and in a bit I’ll have to go run some errands. Catch up on the pile of shit on my overloaded plate, and try to taper back on the overflow of procrastinated chores of daily life with or without CF…but, I revel in these days, the days that allow me to look back at the previous and realize I do have GOOD days, and they aren’t all BAD…it’s hard to pull yourself out of the moment when a day is bad or when stuff isn’t going your way. However, when those good ones roll around it makes you appreciate them that much more. So, if you’re having a bad day, week, month…just try to keep your head up and press on. Hopefully at some point it will ease up and allow you to enjoy the good, but appreciate the bad for allowing your to notice the good. And, with that I am going to go try to knock out some of these errands before the other shoe drops…lol. Hope everyone had/has a good day!

CF Life tip of the day: pick up a pack of sterile rubber gloves next time you are at the pharmacy…put a couple in baggies and keep some in your car, your favorite jacket, etc. The next time you have to pump gas, or use a public restroom, slip the gloves on and cut down on the chance that you’ll get some kind of nasty bacteria, or germs from stuff. Especially because people are so ignorant about good hygiene. It’s a huge stress reliever when you need to do something and there the gloves are…less worry!

CF Life Body Hack # 3: Feeling tired, or just out of it, having been sick the previous day? Go get a hot shave from a male hair salon. They will hot towel your face, head, and neck, use a straight razor with all the accoutrements of the trade…it is amazing how much a hot straight razor shave will improve your mood. Also, good grooming habits tend to make you feel better anytime. Enjoy!

Reluctantly, here it goes…Help me breathe??

I have been trying to figure out a way to keep my health in good standings, with Cystic Fibrosis that is a huge undertaking. Many times it seems impossible, so with extremely deep reservations I am going to do this, something I have been thinking about for a while, frankly very scared to put myself out there. However, I reached a point of no return, I have to do this to keep taking care of my CF…I need some help!

So, I have created this blog site, a YouTube channel that is in the works, a Twitter account, and am in the process of checking out other platforms. I am trying to get some corporate type sponsorship’s to assist me in the endeavor of taking care of my Cystic Fibrosis. The financial strain on my family and myself is too great, I have no other options. I am wanting to get my health back to a place where it is not controlling every aspect of my life, but with CF that’s a very touch and go situation. I basically cannot afford having CF anymore, and desperately need some assistance. I have done some research and decided the best way to go about this was a sponsorship type situation. Basically, I want to try to get sponsored to document my transformation from being extremely sick all of the time, to getting myself back to where I was 10-15 years ago. With a little luck, and a lot of help from the business/professional community at large, I am hoping people will see this and want to take action in helping to fight this nasty disease called Cystic Fibrosis, to help me breathe…

I’ve put a lot of thought into this, and it is really the only way I can put my focus on my health, as doing so requires the other things in my life to take a backseat. I am trying to find sponsorship for things like food, medication, doctor/dental expenses, living costs, transportation, and daily expenses in general. I am not usually one to ask for help, in fact most times I will suffer in silence, but this is as much for my family as it is for me. They need a break, they deserve a break, they deserve to have some help. Since I cannot fully support myself and keep my health up at the same time anymore, and being that I don’t qualify for ANY State or Federal assistance (I have been denied every time since the age of 18) I am taking this leap of faith.

This isn’t in my normal character to ask for help, like I said…I’d usually just suffer, but I feel like this is an opportunity to shed some much needed light on things that are so rare they just don’t get as much attention as something like Cancer, or diabetes. Cystic Fibrosis is a death sentence without the right course of action, and as I keep getting sicker the clock is ticking. I want to show people that there is a way to accomplish things in life that seem like unbeatable hurdles. I want to let people see that being strong is a good thing, but if you need help asking for it can bring some people, places, or things out of the woodwork that wouldn’t usually be there. Hopefully it can be done…

So, if you know anyone in America or around the world who would be willing to help a CF patient fight this battle, and try to win their way back to healthy I am asking you to share this (my) story with them. I am going to do everything I can to get myself back to being in control, and I am going to document the process of going from sick —> not so sick —> damn that guy has Cystic Fibrosis?? I want to win this battle, but I need some help to do so…and, asking that is very hard for me.

I am reluctant to ask this, I know it’s kind of a strange request. But, I want to be able to say I did EVERYTHING possible to come out on top of this. To beat the odds is not going to be easy, but with some assistance I think I can do it! Thank you for taking the time to read this, just taking the time to read it means a lot to me. Any recommendation’s, question’s, suggestion’s are welcomed with open arms and a full heart…

Your Weekend Plans…?

TGIF!! It’s Friday afternoon, and I love the feeling this day brings…it’s like a small holiday once a week, I’m weird I know, lol I’m glad I have the ability to laugh at myself though. So, yesterday I took a huge step outside of my comfort zone, and I posted a video on YouTube and blogged with a link to said video. Now I have 12 views, and a couple of new followers! I have to admit it scared me to put myself out there like that, but I did it, and am glad I did. As for me I’m going to start today, and use my weekend time to get a little more versed in the social media stuff I’ve been a little behind on. I’m going to update my Twitter, as it has been stagnant since its inception. I am probably going to look into Instagram, Pinterest, Tumblr, etc. to see what fits with my desired platform blueprints. Also, since my first video was kind of raw, and not very professional I am going to look into ways to better my recording process, and I think I will probably need a new camera as the one on my computer doesn’t seem to be very decent. If I had the money I’d just go right now and buy one, but ill have to figure something else out until I can swing that. I am super excited because I really feel like this is going to allow me to do what I want to do, and that is help people who feel like they’re alone, with nowhere to turn. It’s hard to put yourself out there not knowing what will become of the vulnerability you show, but so far it’s been worth it!!

Anyways, that is what I intend to do with my weekend, what about you? What are your plans? Going to a movie, party, or yummy restaurant…leave a comment and let me know. Also, I am going to do a social “mixer” at some point in the near future. I am not exactly sure how I am going to facilitate and accomplish this. However, I’ve got a couple ideas that will hopefully allow people to come together (probably virtually) and share some ideas and stories in real time. I will be trying out several new things on my site, blog, and YouTube channel so keep an eye out. Any ideas or suggestions are welcomed. Hopefully everyone had an ok week, but are ready to have a great weekend! Thanks for stopping by, it’s always very much appreciated.

CF Life tip of the day: Instead of using expensive box tissues, buy some cheap but soft rolls of toilet paper to keep near where you spend the majority of your time e.g. bed, car, desk, etc. That way you have something to cough into instead of your hand, tissues for your nose, and even a “napkin” in a pinch.

CF Life Body Hack # 1: Getting sore, uncomfortable, bored, or just not in a great mood? Go to an outside area where you can get some fresh air, give your entire body a good stretch. Now, starting at your feet flex then relax your muscles progressively moving upward all the way to your forehead, make sure your breathing is controlled and steady. You should notice immediate improvement in your mood, as well as physically being more comfortable.

 

70° in the middle of January…

So, it’s 70° in the middle of January…this is absolutely nuts, a week ago it was snowing and getting down to single digits, and now its 70°+. This is extremely aggravating when you leave the house prepared with for your day with jeans and a Patagonia on, and then halfway through the day you are stripping down to your undershirt and rolling your pant legs up as you drive so you don’t sweat you a$$ off all day!

However, on that note it is beautiful golf weather, my favorite hobby or outdoor activity, but I’m usually used to waiting until March to play. So, maybe i’ll throw the golf bag in my car and head up and play 9-18 in a bit, as I finished working very early this morning…didn’t sleep much last night. Anyways, I hope everyone is enjoying this weird weather, the end.

Back to normal “hacking” my health.

It’s about 3:30 pm and I’m sitting here having just finished up some work, don’t really have anything else that’s super pressing to do today so I’m going to blog a bit. I want to start this blog post out by asking a couple of questions…anybody who so desires can respond. It would be appreciated so maybe I can tailor posts to a certain request for knowledge, experiences, information, etc.

So, after the holidays are over everyone has those couple of weeks where you’re stuck in-between being in a holiday type mood, and moving on to get back to “normal” life. At least that’s where I’ve been and may even still be a bit…since I love this time of year so much I tend to drag is out as long as I can. Being that it’s over however I have been having some weird stress and anxiety the past several days, and I’m not too sure why…? I woke up a couple days ago and the CF crap had weaseled its way back into my main thought process. It sucks, but with that there comes a bit of an ability to view things from a distant perspective. Meaning even though it sucks I can kind of step back and review how I am doing before, during, and after the holidays, and why. I’ve been waking up at 6-7am again as opposed to being able to sleep comfortably until 9-10am, I don’t like it but it gets me back into my regular routine. If I had my way society in general wouldn’t get moving until 10-11am and go until later in the day, but that’s just my personal preference.

Here are some of the things I’ve re-instituted into my daily “body/health hacks” some may be helpful to anyone and others may only be applicable to people who deal with terminal illnesses like Cystic Fibrosis, diabetes, Crohn’s, etc…so, body/health hacks: when I first wake up I cough like crazy so I keep two drinks on my bedside table, 1 is a bottle of water(a must) and the second varies, sometimes its tea, sometimes its coffee, so basically something with minimal sugar or a sugar amount I can control. The reasoning being that a bit of caffeine will open up closed airways, so when you wake up in the morning all congested and clogged up

So, my day may look nothing like yours, but these things work…so try them out. It helps more than you think to be able to just pull a snack out of your bag that isn’t junk food. Or, to have a drink to hydrate with, and then one to sip on as the day goes, again something healthy as well as cheap being that it isn’t a $5.00 Starbucks, or a drink from the 7/11. All of these things not only help physically, but also mentally it’s comforting to know I won’t get hungry in traffic and have to pull over with low blood sugar. Finally, it saves me some money, as I don’t have to stop at junk food stores to refuel. These are just a couple of the many things I employ in an attempt to keep my body at a functioning level, keep myself from being hungry/thirsty, and without braking the bank, which I do just keeping up with Dr.’s appointments. All in all it is very helpful, and I can post more of these little tricks or “hack’s” as they are so often referred to in pop culture…They may seem inconsequential to most but when just doing your day is a rough task any little bit of relief here and there is a godsend, and enormous edge in keeping your health up to par while going through life and trying to keep on keeping on. Hopefully this helps one person figure out something they didn’t previously think of, or didn’t try before. That is the whole point of my page, and my blog, I want to be able to provide relief in situations where I didn’t have any help, or even information to go on. Enjoy the rest of your day!

45 minutes until Christmas Eve!

So it’s December 23 at about 11 o’clock in just a bit it will be Christmas Eve! This time of year I really get a lot of “natural high” from the smells, sights, and sounds…It rocks! I finally figured a good way this year to get some stuff done quicker…look online first and then go shop if you need to, lol. I know obvious, right? Nope, not for me, I usually just suck it up take some Advil or Ibuprofen, and hit the stores for hours on end. I’m also super weird about what I get people, and it takes me TIME. Triumph, I finally got it done, I’m ready for Christmas…time to relax. Warming seasonal beverages, egg nog, good food, and family are just my favorites and everything else that goes with it is an bonus. I enjoy presents, and I prefer giving more than receiving actually but, its all fun! Well its late, I’m tired, and sore from sitting in the same position for 2 hours wrapping presents…sweet!?…no. Merry Christmas!!