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Spread too thin…

Well, I have been trying to make a post a bit more often but like the title says I’ve spread myself I bit thin…but, in a good way.

I have been hitting the gym consistently, today I did chest, tri’s, and calves. Maybe ill post one of my workout routine’s soon. However, one of the things about Cystic Fibrosis is you have to pace yourself or you’ll burn out quickly. So, basically every other day I have to “rest,” which in CF terms means: hang out around the house, don’t do anything too active, eat and drink a lot…and sleep as much as possible to allow the body to recover.

I’m not gonna lie I can deal with not being able to breathe well, put on weight easily, or even taking 100 pills a day. What I absolutely hate is “resting!”

There are only so many thing you can do before you start to go a little stir crazy…and it gets difficult. So, I’ve been taking on a few new projects, trying to get my foot in the door in a couple of new situations…just for some change of pace.

And, also to try to acquire some new income streams. Since working a 9-5 is kinda out of the question for me, I have to be creative. Its a bit of a pain in the ass.\

But, recently having a few things going on simultaneously, trying to keep a steady workout routine, and taking care of my CF stuff I have a bit more on my plate than I usually do and I can feel it, and the pressure.

So, I guess that’s good problems to have…things can ALWAYS get worse…lol. As such I like to enjoy myself as much as I can when things are going “well.”

Anyway, hope everyone is having a good week. Its almost Wednesday so that’s cool…but, I appricaite you reading!

-p.s. I added a new body hack, and daily tip, the focus is working out, and nutrition based on health benefits…check them out!

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Hitting the GYM!

So, I haven’t been posting as much recently, which wasn’t intentional…I had been feeling a bit crappy for a while.

However, lately I have been pretty busy and just haven’t had much free time. As I’ve been trying to create a positive snowball effect of things to improve my life a little bit.

I have been consistently hitting the gym..an working out with a trainer friend of mine. Gains son! Lol, anyway…I have been seeing some pretty decent results not in just physical appearance, which used to be the most important thing to me…wanted to look good when I took my shirt of, haha…but, also in actual applicable strength. Something that I know many CFer’s deal with when they go extended periods being stuck in bed, or being told by Dr.’s to “take it easy…”

It is very easy to develop a sedentary lifestyle when you have something like CF or anything that is chronic and debilitating, it becomes almost SOP to take is easy. It takes less to feel sick, especially when you don’t limit what you do, so putting limits on yourself is just almost a knee-jerk reaction.

So, I used to be pretty heavy into body building, I weighed like 160 and was pretty jacked especially because of my body frame, and the near 0% body fat, lol…CF does have some benefits, even if they are kind of shallow…I went a good long time away from the gym, but I had some muscle memory still and the first couple workouts were surprisingly beneficial. Then you hit that “wall” where you really have to push through because you aren’t seeing the same instant results you were seeing for those first couple of workouts back.

Now, it had been about 1.5 months and I’ve been pretty consistent, I’m seeing some new muscle definition after breaking through that wall of resistance you get for the first but of time you start lifting again…its kind of a strange feeling to describe, but you feel “off, slow, weak, out of place, unsure of yourself, or even unsure of your workout routine…”

It took a few weeks for that to go away but, since I’ve experienced it before I knew I had to keep at it and let myself feel the frustration, so that I could feel when I passed that wall…and sure enough I did, I started being able to lift more, seeing more perpetual pumps, and generally having more energy and strength during the days.

It goes without saying that the physically visual benefits of working out are what a lot of people go for, I used to be one of them…but, as I’ve seen more CF related problems come into my life the impact that isn’t outwardly visible is WAY more of what I’m going for…useful, applicable strength, and generally feeling better…that’s what I hit the gym hard for. Don’t get my wrong though, it’s a great feeling to go into the locker room post workout, pull off your shirt, and see he visual improvements of killing a workout.

Well, this is a pretty long post, but I wanted to jump back in with both feet. I am going to go back to doing a couple of posts a week, as well as some new body/CF life hacks…and now I have a few more that I had forgotten over the years.

So, if you have something life CF or any chronic illness that greatly restricts what you can/can’t do sometimes the benefits of pushing that “I don’t feel good, I’m just gonna take it easy” feeling out of the way, sucking It up, blasting a few albuterol shots, and just getting out and doing what you need/want to do outweighs the consequences you will end up facing. For me the biggest one is actually psychological. And there’s an incredible benefit and feeling to know I could have stayed home but I sucked it up and did my thing anyway.

Hope everyone has a good rest of the week, thanks for taking the time to read!

–  Will

New to Instagram

Sooo, just FYI I am like I’ve said in the past a dinosaur when it comes to social media stuff, Facebook was coming into a nationwide thing right as I was starting college, and I already had a Myspace, and had learned how to use it, finally…lol…But, I stuck with those two through college. Afterwards I just had more things to think about than keeping up with social media stuff.

Anyway, I am now on Twitter, and just got onto Instagram yesterday…so ya, I’m catching up with the times, haha.

It’s in its infancy but check it out at pikapp858…

Hope you enjoy it as its less focused on CF life and more on my daily life outside of CF.

another late night, or early morning

Well, its almost 4:45am and I’m still awake. I dozed for a bit but my sleeping schedule has been extremely strange of late. I sleep a few hours and am awake for several, rinse and repeat…it sucks.

I have been in a very peculiar situation for the past couple of years, in that I have a better control and understanding of what my life with CF is going to look like as I get older, but it also changes slightly everyday, no days are completely predictable of even able to be planned for and it is pressuring me to figure out how to make this situation work to my benefit, or at least be able to benefit while dealing with my situation. Which is very damn hard, and not pleasant at all!

I just wrote my first blog for a few months a couple of days ago, and got a decent number of people reading It as well as a few new followers which is always a nice surprise. But, to be honest, I realize everyday more and more how much different my life is going to be than any kind of “normal” I had ever pictured as a kid and it is a bummer to say the least.

The only options I really have are “outside the box” type things, since regular places of employment either can’t accommodate my schedule, or I accidentally cough during the interview, lol…in which case I get extremely strange, albeit concerned looks, followed by: “are you ok?” or “do you cough like that all the time?” at which point I have to explain in detail what Cystic Fibrosis is, and that is isn’t contagious…and then the obligatory “thank you for coming in, we’ll let you know…” Which never happens oddly enough. I get it…I sound like someone who has been smoking since they were 2 and is probably gonna keel over the second I stand up out of the chair, haha.

Anyway, enough ranting for one day.

Ill be getting back to my daily life/body hacks posts soon, I actually have quite a few stocked up, and hopefully the tone will be a little more upbeat. So, thank you for reading and please know I welcome any questions or comments, or even suggestion…about anything. Hope everyone has a great rest of the week! Appreciate you stopping by…

-Will

It’s Been a While…

So, I haven’t posted anything to my site in a while, and sadly it was unable to be avoided. That’s one of the shittiest parts about CF if you get sick or rundown, there’s no toughing through it, you just have to endure…until its run its course.

Well, for me the past several months have absolutely SUCKED. I have had one problem after another, and rundown at its worst. So, I’ve been biding my time, and recovering as best I could.

While I couldn’t really do anything physical or even much of anything, I have been thinking about EVERYTHING a lot…and I think that’s one of the things about CF that’s strange. I’ve been told many times over my life that I have an “old soul.” And I’m guessing most CFer’s have as well. I think it’s a given when you have so much time to contemplate EVERYTHING. It forces you to “age, or grow up” faster than the average person.

Throughout my while life I’ve had older friends, I’ve dated people who are usually older than I am. And not purposefully…but, more out of a desire to have someone I can relate to better, they just so happen to be older.

So, being that the last few months have been difficult, I’ve been trying to figure out a way to accommodate life around being sick, and its not easy. I have however discovered a few things that may make it easier as I get older, if I get “older.” (not trying to be morbid, just realistic).

The Best way I can describe what I’ve been thinking about is simplicity, I need to develop my life around a simple set of needs, wants, belongings, activities, etc..

So, I have decided I want to look into the “Tiny House” movement, and find a way to work in some sort of field where I can do most of my work from home, it will probably be the only way I keep a semi-normal life…

Anyway, I have been sleeping very little and am trying to get this post up as a re-entrance into my posting schedule, as I’ve been out of the loop for so long now.

For that I do apologize, I wish it wasn’t this way, but it is…for now at least. So, to those who have read and posted in my absence I appreciate you greatly, and any new viewers I thank you for taking the time. it means a lot to me to be able to reach even the small number that I do.

Hopefully everyone has had a good summer, and enjoys the season change as much as I do…but, for now, have a good rest of the week and I’ll be posting more frequently now, hope you enjoy. Thanks again for stopping by!

Fellow CFer’s…breathe strong! And stay healthy!

Love the sound of rain…

I haven’t been posting as much which is going to change shortly, as my health comes back around after the changing of the seasons that happens to screw me every year almost like clockwork…I am going to start getting my shit together and doing what I need to do.

However, I have learned over the years what “pushing it” can do and I’m not gonna be stupid anymore…so, I’m taking it slowly…but, expect more like a post a day or at least a couple a week coming up.

So, right now I just got done showering, I’ve been super busy the last couple of days trying to catch up on stuff after a surgery, and general CF stuff, as well as Spring cleaning, and all kinds of other stuff going on…we’ll just say my schedule is jacked the hell up.

But, back to my topic….rain. I’m sitting here listening to music and I have now turned it off, so I can listen to the rain, I love the rain…it relaxes, de-stresses, and allows for a “white noise” type of sound that can be used to enhance an already relaxing task like meditation.

So I am about to mediate and I am loving that its raining because now I don’t need any Zen music to play, I have the rain…lol.

I guess this was kind of a weird all over the place post…it is kind of my brushing the cobwebs off post. Getting my typing skills back down and used to being used on a daily basis for something other than mundane tasks.

Well, I am done rambling…lol. Hopefully everyone has a great weekend.

The Return…

So, it has been a pretty long time since I’ve posted anything, I haven’t been doing too well health wise, but trying to keep my spirits up.

I had some really bad CF rundown, and then a week ago I had a broken tooth extracted…that’s 3 now in less than 2 years, ughhh!

But, I don’t want to let this blog go stagnant, however I have to admit it has been low on my list of priorities, especially being in pain and not being able to take pain medicine…I don’t know if I’ve mentioned this before, but I have had a problem with pain meds in the past, doctors will fuck you up if you’re not careful…

Anyways, I’m doing a good bit better now, still not totally healed up, but on my way for sure…hopefully!?

After my Mollie girl left us, I had a pretty rough couple of weeks, then an extraction and now I’m finally starting to come out the other side, but its a bitch to say the least.

However, I am a strong willed person and I wont let things defeat me anymore, besides killing me I’m not gonna stop. So, good…but, kind of morbid I know, lol…

Well, I just wanted to get back into the swing of things and get y’all updated on my situation…im not dead…lol! I hope everyone has had a good spring break, Easter, or anything you’ve been up to really…

And finally, I will be posting regularly again, and am actually thinking about upgrading my site subscription for some different benefits and more personalization, maybe starting to branch out a bit and see how it goes…so wish me luck!

Thanks for reading and hope everyone is doing well!

– Will

 

Watchathon Week!

So, it’s been a rough time for me recently, if you’ve read any of the recent posts…the few I have made…you will know I’ve been sick, my dog had to be taken in to be put down, and all kinds of horrible shit.

CF life is terrible in and of itself, but when you get even one thing extra that adds pressure, stress, angst, pain, anything really that isn’t easy to deal with it gets really f#cked up. Everything becomes exponentially harder.

So, there are certain times when it isn’t as hard because something (an outside variable) makes stuff easier to disregard.

Well, this week is watch-a-thon week on demand, with X-Finity…I live in an area where the cable company I have really has a monopoly on the area. It sucks sometimes, but there are benefits, and I am currently in the middle of one of those benefits: “watch-a-thon week,” it basically opens up the channels like Starz, Showtime, etc. you can either watch shows that you don’t have access to unless you pay for the particular channel, or you can watch the movies on demand on those channels. It’s pretty cool, it lasts about a week, and it allows you to catch up or watch stuff you wouldn’t get to unless you pay for those premium channels, which I don’t…lol.

Well, that’s what I have been and will be doing for the next couple of days, and I will be watching a bunch of movies, and maybe some cool TV shows I don’t know yet, i’ll figure it out when I run out of movies I want to watch, if that happens.

Right now I am watching a movie called “Freaks of Nature” it’s like a mix between “Can’t Hardly Wait, Final Destination, and Twilight/Walking Dead”…lol. Pretty funny, and a crazy vampire/alien/zombie/human integration movie…nice!

Anyways, hope all is well with everyone, and have a good week!

Damn!

Well, its been a while since I’ve made a post, been having a pretty hard time recently.

We had to take my dog to the vet the other day, she’s had cancer and had a tumor…we were given a diagnosis a year ago that she’d only be able to go for 2 months, we had her for an additional 14, and without any pain we were comfortable having her stay with us…as the vet put it “she doesn’t know she’s sick, so as long as she isn’t in pain, she’ll be fine.”

So, we brought her home started feeding her only home cooked food, and making sure she got lots of extra outside time and loving, well it paid off and I got to have my sweet girl around for a while longer…but, as I didn’t want to have her be in any pain at all, the second I realized she was having pain we took her into the vet, and they confirmed the suspicion, so we did the humane thing, and didn’t keep her around being in pain.

As I was saying goodbye and tears were streaming down my face and onto her greying hair, I thought about all the times I had cried into her fur and she always laid right there and allowed me to release my pain with no judgement, especially when I had no one else around. She was an angel…that’s for sure.

Saying goodbye was one of the hardest things ive ever done, but it was her time, I do miss her every second of everyday though, especially when she would be on my heels, and now she isn’t…im still having bouts of crying and missing her next to me.

In time I may get another dog, but not right now. Being a CF patient brings with it a lot of weird things regular people just won’t ever have to think about…I honestly thought I wouldn’t be here without her. Going through the shit I go through without her is miserable, and I have to remember to keep my head up where before she would bring a smile to my face.

I miss her…

Stay Positive

So, lately I’ve been having a rough time both physically with the Cystic Fibrosis, and also a little bit mentally.

Physically, I’ve been having a rough time with the allergy season, It has sapped my energy, and made my face itchy, watery, and red…lol…it sucks…

Mentally, I’m having a bit of trouble, I’m alone a lot and I’m struggling to figure out what to do with my downtime, especially when I don’t have energy to do shit…

Making yourself do things when you don’t feel good is one thing, but when you feel extra shitty, its damn near impossible, and when moving is taxing it takes it to a whole new level.

I see and hear about what people are doing and it bums me out…I try my hardest to stay positive, which is very hard to do, and 5 years ago I would’ve had a serious breakdown by now, probably gone on a bender and paid for it for several months afterwards. Now, I have gotten my shit together since then, but mentally it is never going to be easy to go through life with CF.

I am always going to have to be strong mentally, not being rock solid will lead to my demise, and not metaphorically, but literally…it definitely takes a toll on you knowing things will NEVER get easier, in fact they’ll only get harder.

It is a mind f#ck and then some…but, I am strong, and I will stay positive, and I will make it…

I have made the resolve of my inner strength being solid, I have an iron will, and it cant be broken. Maybe temporarily damaged, but nothing will ever break me totally again, ever. To tell the truth knowing that is the only thing that keeps me going…is that I wont break, life will have to get rid of me to break me, and even then I hope to leave behind a legacy that outlasts my time here physically.

With that I’m gonna go listen to some rap, and get in the mood to dominate when I wake up tomorrow!! Do what you gotta do…