Sooo, just FYI I am like I’ve said in the past a dinosaur when it comes to social media stuff, Facebook was coming into a nationwide thing right as I was starting college, and I already had a Myspace, and had learned how to use it, finally…lol…But, I stuck with those two through college. Afterwards I just had more things to think about than keeping up with social media stuff.
Anyway, I am now on Twitter, and just got onto Instagram yesterday…so ya, I’m catching up with the times, haha.
It’s in its infancy but check it out at pikapp858…
Hope you enjoy it as its less focused on CF life and more on my daily life outside of CF.
Published by cysticfibrosislifeblog
I am a 29 year old CF patient...I've been through really fun times, and really shitty times...in recent years it has been the latter. I am creating this in hopes of reaching just one person who feels alone, scared, tired of being sick and tired, etc. Having CF is a really tough situation because it is what is considered an invisible disease, so unless youre hooked up to a oxygen tank most seem fine at first glance... and people tend to overlook the obvious illness right in front of them, also one of the things about having CF is you don't want to only talk/think about CF ....I could go on and on complaining but we'll leave that for another post.
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Will's CF Life 
I am a big supporter of all you Hero’s kicking 65 roses ass! I am so happy to have found your blog, and am excited to follow you! Ps. I just got instagram like a week ago, so don’t feel too bad!
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Thank you, that means a ton to me! I have been a little under the weather, but I am trying to get back to posting regularly…lol, ya little behind the social media curve…
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